I couldn't tell you how many times I teared up. It's tragic and heartbreaking, but it's also told skillfully by her loving - and talented - father Frank Deford. Frank Deford, who turns seventy today, is one of my writing heroes.His book, Alex: The Life of a Child, is the most moving memoir I have ever read, probably because my daughter Erin and I feel like Frank’s relationship with his daughter Alex mirrored our own.Alex had her “little Daddy” wrapped around her little finger, and he wouldn’t have had it any other way. As a young woman I volunteered at an auction for Cystic Fibrosis for a number of years. Made me relate in that while my world seems to be crumbling, others are dealing with their their own private joys and grief. I first read it after seeing a TV mini-series that was done based on the book in 1985 or so.

At the same time she was such a courageous little girl that your heart swells with the love of her. Unforgettable. It's terribly dramatic, but they literally say that. His book, "Alex: The Life of a Child," is the most moving memoir I have ever read, probably because my daughter Erin and I feel like Frank’s relationship with his daughter Alex mirrored our own. I have people tell me that she changed their lives. I think everyone should read it. I found that Alex reminded me of this niece and I got choked up as I read what she said to her parents and others. People leave things at her grave. A new introduction contains information on the latest cystic fibrosis research, and a touching postcript reveals how the Deford family came to terms with the loss of Alex. They really do. I'm not sure if that's good or bad. And of Alex's incredible personality and strength.I just finished reading this book. And wondering at the magnificent spirits that sometimes come and inhabit the bodies of the ones we do know and really love.This is one of the first books I can remember checking out myself and reading, and I don't know what would have possessed a 12 year old to read a book like this, but it definitely changed me and stayed with me all these years. I'll never forget how DeFord realizes that she was born just after the 1970 census, and died just befThis is one of the first books I can remember checking out myself and reading, and I don't know what would have possessed a 12 year old to read a book like this, but it definitely changed me and stayed with me all these years. The sportscaster author once had two children, a career a house a dog a lovely wife and everything. Frank Deford wrote very honestly about his family's experience with his daughter's disease and while he expressed their anguish it somehow didn't translate into anything more than a clear-eyed chronicle of Alex's life. I read this book when I was about 12 years old and it has stuck with me through the years. haha!I have never read a book like this one, from a parents point of view caring for a terminally ill child. This consists of diffrent positions and someone punding on her chest. This year when a friend of a friend died of the same disease-cystic fibrosis-I immediately thought of Alex's story and knew it was time to read the book.I read it as a young teen and it affected me so much and I have never forgotten Alex. I normally don't read books like these but I was given this book, along with some others, to read. Reading Alex changed my whole outlook on life. I saw the TV-movie of Alex's story in the late 1980s as a kid and it really touched me. As soon as I read it I knew if I ever had a little girl that her name would be Alex. The Golden Gate in Jerusalem The Bible deals with life and history with real people and specific While I thought I could only be crying through out this entire book, it was not like that at all. She just brightend my day.

Alex had a lot of spirit and spunk and love for her family, and despite all her pain she lived a wonderful life. For me this book helped me go on with the daily challenges that I face with each of my children ......no matter what happens we just need to love them and support them as best we can.

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